Autoimmune Community Voices Podcast

Episodes

  • Introducing the Autoimmune Community Institute. Episode 1 of Autoimmune Community Voices.

    Episode 1: Introducing the Autoimmune Community Institute

    In our first episode, our host Leea Sarvela interviews Dr. April Moreno, founder of the Autoimmune Community Institute, to introduce the organization to our listeners.

  • Episode 2: The Science of Autoimmune Disease with Dr. Noel Rose, Father of Autoimmune Diseases

    Episode 2: The Science of Autoimmune Disease, with Dr. Noel Rose

    We were blessed to record this episode with Dr. Noel Rose in 2019 before his passing in 2020, which happened just a week before we started the Autoimmune Community Institute.

    Dr. Rose is consdered the father of autoimmunology, the first to verify autoimmmune diseases as a legitimate condition rather than a precursor to other diseases.

    In this episode, Dr. Rose shared with us the research that took place with rabbits at the time, his interests in autoimmune disease research, and how much he enjoyed speaking to people and supporting autoimmune disease research. We hope you enjoy this special episode.

  • Episode 3: Finding Rare Autoimmune Disease Support  with Monika Aldarondo of PSC Mami

    Episode 3: Finding Rare Autoimmune Disease Support with Monika Aldarondo of PSC Mami

    We share a recording of our conversation with Monika Aldarondo of PSC Mami podcast and community from our 2022 Autoimmune Health Equity Summit. Monika discusses her diagnosis of Primary Sclerosing Cholangitis and Ulcertive Colitis, and provides information for our English and Spanish speaking community.

  • Autoimmune Community Voices Episode 4: Diagnosed as Undiagnosed - Interview with Leea Sarvela

    Episode 4: Diagnosed as Undiagnosed - Interview with Leea Sarvela

    What is it like to have a dianosis that is not yet diagnosable? In this episode, we speak to Leea Sarvela, a pre-med student at the Massachusetts College of Pharmacy and Health Sciences, who shares her autoimmune diagnosis experience, which clinicians have not been able to specifically diagnose.

    Leea shares her experiences over the years and how she has been able to advocate for herself with the support of her friends and family.

  • Episode 5: Staying Strong with Lupus and Mental Health: Interview with the Lupus Dream Team

    Episode 5: Staying Strong with Lupus and Mental Health: Interview with the Lupus Dream Team

    In this episode from this year's Autoimmune Health Equity Summit, we speak to our board member, Emmitt Henderson III and Dion Langley, who together are the Lupus Dream Team. The Dream Team shares information on awarneess of males with lupus, and the importance of staying mentally strong for quality of life.

  • Image of mountains and lake with hiker. Episode description:

    Episode 6: Self- Advocacy for Autoimmune Living with Daniel O'Leary

    In this episode, meet Daniel O'Leary, our blog and marketing team volunteer. Daniel shares his autoimmune story, the importance of COVID safety, and how he advocates for his health and others though sharing important autoimmune stories from our community through our blog. Daniel is a college student preparing for medical school where he wants to become a pediatric gastroenterologist to help others who are going through what he experienced as a child.

AUTOIMMUNE COMMUNITY VOICES

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